Living with an illness is never easy no matter what you have, but I have found being ill with an illness that is invisible very challenging.
Yesterday I was on a bus in a lot of pain and tired, I sat down on the last seat left and then an elderly lady got on after me looking for a seat. Normally I would give her mine but because I was in pain I didn’t on this occasion, the looks I got from the other passengers were less than pleasant.
As I was on that bus waiting to get home it occurred to me that people didn’t know I was ill as I seemed perfectly fine from the outside, I didn’t have a walking stick or anything else so people thought I was just some 20 year old refusing to give up her seat to the elderly. Anyone who knows me realizes I’m nothing like that but people who don’t know you personally would never realize you are living with an illness.
This sort of thing has happened on many occasions and I wonder how it would have turned out if I looked sick on the outside as well as the inside.
I also notice the unfairness of our support system in the UK for people who are unwell but don’t look it, you always have to PROVE your ill, getting asked the same questions over and over again only to give the same answers each time.
This is just a reminder that you shouldn’t judge a book by its cover! I’d love to hear if anyone else has this problem please tell me in the comments. Thanks for reading Xxx